What is Late Diagnosis? Part 2 of 2


Over nine years ago I began compiling this list (I love systemizing things!) about two years after my own identification. It’s time I got some feedback: this is a work in progress. Comments on Twitter would be appreciated–I know these are mostly US and UK adults. It’s pretty clear that females and nonbinary individuals tend to get assessed later. I cut off at 1980, because it has gotten easier since then, as awareness has increased.
I know the list could use more POC and other nationalities. I hope to do some profiles of people included. They are fascinating and very different. What interesting company we keep!

Pictured is Sir Anthony Hopkins, diagnosed on the autism spectrum at age 70.

It is better to know late than not at all. #StillAutistic #AutisticElders #LateDiagnosed

NameBornDiagnosedEst. AgeMain Endeavours
Anthony Hopkins1937200770Actor, artist
Jim Sinclair19401980s40Autism rights activist
Leith McMurray1946200558Musician/counselor
Temple Grandin19471950 3Scientist/author
Nick Drake*1948N/Ad. 1974Guitarist/English major
Jerry Newport1948199547Author/speaker
Dan Aykroyd1952200442Actor/comedian
David Byrne1952201260Writer, founder of Talking Heads
Wenn Lawson1952199442Psychologist/author
Tim Page1954200045Author/professor/music critic
Mary Meinel Newport1955199337Actor/speaker
Martine Stonehouse1956200155Transgender and labour activist
John Elder Robison1957199740Inventor/author/advocate
Gary Numan1958197921Rock performer, The Cars
Jessica (Elly) Park1958childhoodSubject of 1967 book The Siege, fine artist
Dena Gassner1959199938Professor, author, activist
Liane Holliday Willey1959199637Author/autistic mother/advocate
Daryl Hannah1960childhoodActor, environmentalist
Susan Boyle1961201251U.K. performer
Michelle Dawson1961199231Canadian researcher
Chris Packham1961200544Naturalist/TV presenter
Eva Cassidy*1963N/A d. 1996Guitarist/singer
Gunilla Gerland1963199229Swedish author/activist
J David Hall1963201956Founder of NeuroGuides, parent, advocate
Donna Williams/P. Samuel1963199825Autism blogger/author d. 2017
Anne-Laure (Anlor) Davin1964201046Tennis star, author, Zen teacher
Courtney Love19641973 9Singer, founder of band Hole
Valerie Paradiz1964200340Author of Elijah’s Cup
Dawn Prince1964200036Scientist/author
Michael John Carley1964200036Author/advocate
Jennifer McIlwee Myers1966200236Nurse, author
Samantha Craft1968201244Educator, author, employment recruiter
Sarah Hendrickx1968201143Author, presenter/diagnoser of adults
Barb Cook1969200940Founder, Spectrum Women, counselor
Yenn Purkis1974199420Blogger, speaker and civil servant
Stephen Wiltshire19741977 3Artist, autistic savant
Clare Sainsbury1976199620Author/radio host
Nick Dubin1978199517Presenter/author
Hannah Gadsby1978201638Comedian, presenter, author
Daniel Tammet1979200425Math savant/author/poet
Almost all diagnosed since DSM-IV (1992); some had other labels before that (schizophrenia, PDD, BPD)